|
Welcome to the Website of the UK's
Klinefelter Organisation
The KO is a
voluntary not for profit organisation funded by membership
subscriptions and donations.
The purpose of
the KO is to:
-
act as a
contact point for fellow Klinefelter Syndrome sufferers for
the purpose of mutual support -
provide
information and resources to KS sufferers, their families
and partners
increase
awareness of KS within the UK
To find out more about Klinefelter's
Syndrome click the link on the
left.
NEWS &
UPDATES
Study Announcement - a new study looking at what it is like
to live with KS...
The National Institutes of Health and the
Johns Hopkins University Bloomberg School of Public Health
invite you to take part in a study to learn more
about how adolescents and adults with Klinefelter Syndrome
(XXY) think and feel about living with KS.
Individuals with
Klinefelter syndrome (XXY) who are 14 years or older are
needed to take part in this study. Participation involves one
survey that takes 30-40 minutes to finish. It can be taken
online or a paper copy can be mailed to you.
If you have Klinefelter syndrome and are
18 years or older, please go to
www.surveymonkey.com/xxystudy
to learn more about our
study and to take part.
If you are the parent of an adolescent
with Klinefelter syndrome who is 14-17 years old or who is
still your dependent, please go to
www.surveymonkey.com/xxyparent
to learn more and to share
this information with your son.
If you have any questions, please contact
Amy Turriff at (301)443-2634 or
turriffa@mail.nih.gov
.
| |
ask@klinefelter.org.uk
Buy your KO
Pin
-------
Current KO
Member ?
You can now get your Members'
Area access
ID -
Click 'Members Area' button for
details of how to request a log-in ID and password.
-------
Not yet a member
?
-------
|
